Archive for the ‘Resources’ Category

Long term opiate use safe; One woman’s experience with Savella

There are two great arti­cles from Karen Lee Richards in HealthCentral’s Chronic Pain Con­nec­tion newslet­ter today. The first, One Patient’s Expe­ri­ence with Savella for Fibromyal­gia, Richards brings us detailed feed­back from one of her con­tacts, Brenda, who has been tak­ing the new drug for seven weeks. Many of us have heard of Savella, but so […]

December 3, 2009  Tags: chronic pain, Forest Tennant, Karen Lee Richards, opiates, Savella  Posted in: Fibromyalgia, Pain, Resources, treatments  6 Comments

Tips and Tools for Working From Bed

I’ve never encoun­tered this web site before, but it was linked from a blog car­ni­val, and the arti­cle is pretty good: Because Sit­ting up is for Suck­ers: 70+ Tools, Tips and Hacks to Work from Bed I still miss my lap­top! And I have a pretty nice setup, but can’t help drool­ing at this: the Ergopod […]

June 27, 2008  Tags: bedbound, computing, ergonomics  Posted in: employment, Resources  No Comments

Review: Women, Work and Autoimmune Disease

I read Women, Work and Autoim­mune Dis­ease by Ros­alind Joffe and Joan Fried­lan­der a few months back, but for some rea­son my review on Ama­zon never showed up, and I didn’t think to keep a copy for myself. It seems to finally be there now, so I’ll put it here, too (slightly expanded). This book […]

May 29, 2008  Tags: autoimmune disease, chronic illness, Joan Friedlander, Rosalind Joffee, working  Posted in: disability, employment, Resources  One Comment

Free Screen Magnifier Software

This isn’t where I usu­ally get geeky, but I think this util­ity might be use­ful to many read­ers. I get notices from the Give­away of the Day and Game Give­away Of the Day sites each day as to what they have avail­able that day. They make arrange­ments with var­i­ous soft­ware pub­lish­ers to dis­trib­ute com­mer­cial software […]

February 23, 2008  Tags: , accommodations, Magic Lens Max, software, utility  Posted in: Resources, Technical  No Comments

The Value of Education for Chronic Illness Patients

Paula Kamen, author of All In My Head, talks about the value of edu­ca­tion in cop­ing with chronic ill­ness in an excel­lent edi­to­r­ial in the New York Times. Leav­ing the Rab­bit Hole. This pas­sage, in par­tic­u­lar, spoke to me: The worst thing, to me, about hav­ing a non-stop multi-year headache isn’t nec­es­sar­ily the pain. Or […]

February 19, 2008  Tags: chronic daily headache, chronic illness, Education, migraines, Pain, Paula Kamen  Posted in: Education, Pain, Resources  One Comment