Posted on 27-06-2008
Filed Under (Resources, employment) by cyn

I’ve never encountered this web site before, but it was linked from a blog carnival, and the article is pretty good: Because Sitting up is for Suckers: 70+ Tools, Tips and Hacks to Work from Bed

I still miss my laptop!

And I have a pretty nice setup, but can’t help drooling at this: the Ergopod 500. I’m not about to look at the prices, though!

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Posted on 29-05-2008
Filed Under (Resources, disability, employment) by cyn

Women, Work, and Autoimmune DiseaseI read Women, Work and Autoimmune Disease by Rosalind Joffe and Joan Friedlander a few months back, but for some reason my review on Amazon never showed up, and I didn’t think to keep a copy for myself. It seems to finally be there now, so I’ll put it here, too (slightly expanded).

This book is one the best I’ve ever found for those of us who have chronic illnesses, but want to continue working. It goes beyond the standard “coping tips” to talk bluntly about pacing yourself, searching for a job, keeping a job, negotiating with your employer for accommodations, and being self-employed. Topics like “when do I disclose a disability/illness?” are covered by authors who have extensive personal experience building their careers despite chronic illnesses.

The title does refer specifically to women, but I think the book can also be very useful for men. Likewise, there’s no reason to limit readership to people with autoimmune diseases.

I’ll be buying copies to send to some of my friends. I don’t plan to let mine out of my sight! I hope to get a copy of the accompanying workbook soon, as well.

Joffe’s blog, Working With Chronic Illness, is also good reading.

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Posted on 23-02-2008
Filed Under (Resources, Technical) by cyn

This isn’t where I usually get geeky, but I think this utility might be useful to many readers.

I get notices from the Giveaway of the Day and Game Giveaway Of the Day sites each day as to what they have available that day. They make arrangements with various software publishers to distribute commercial software absolutely free in return for advertising. The catch is that the software must be downloaded and installed within the 24-hour period of the giveaway.

I’ve been watching the site for a year or so, I think, and have downloaded and tried quite a few pieces of software. I’ve never found any malware in any of them, although I believe I’ve read mention of people getting unwanted software installed in a bundle because they didn’t pay enough attention to what they were agreeing to during an install.

Getting back to my point, today’s giveaway is a nifty utility that will magnify a portion of your computer’s screen, enabling you to better make out tiny print or small details. I didn’t have one of these installed on my machine until about nine months ago, and I wouldn’t want to live without it now. There is a free utility built in to Windows, but it isn’t quite as robust as some of the other products on the market. The description for this one says:

Magic Lens Max is a real-time, intuitive and advanced screen magnifier and desktop viewer to zoom, rotate, enhance, view and capture any area of the screen display. With built-in highly optimized resampling and enhancing filters, Magic Lens Max quickly generates high-quality lens view with clarity in various situations. It also lets you viewing in different color mode or through separated color channels.

As I type this, there’s another 22 hours and 55 minutes left to download and install Magic Lens Max. Why not give it a whirl?

(Yes, it’s a Windows app. Aren’t we the only ones who need such crutches?)

Oh - while I don’t find today’s free game offering terribly interesting, I have found some of the games to be very useful distractions on days that involve too much pain to do anything and I can’t focus well enough to read. Popping bubbles or whatever is a perfectly mindless pursuit, and very conducive to zoning out and get my head away from the pain for a bit. I don’t do “twitch” games, or anything that requires a lot of dexterity or is completely tied to speed. If I was that dextrous and/or fast, I’d be doing something more useful than playing computer games.

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Posted on 19-02-2008
Filed Under (Education, Pain, Resources) by cyn

Paula Kamen, author of All In My Head, talks about the value of education in coping with chronic illness in an excellent editorial in the New York Times.
Leaving the Rabbit Hole. This passage, in particular, spoke to me:

The worst thing, to me, about having a non-stop multi-year headache isn’t necessarily the pain. Or the way it tends to disrupt intimate relationships, empty all financial reserves, and sabotage the best-laid career plans. It’s not even the endless barrage of (albeit well-meaning) suggestions for “cures” from everyone you meet, most of which you’ve already tried anyway (except for the colon cleansing and the Jews for Jesus conversion).

No, it’s the emotional suffering – from all the guilt and the shame, of patients like me thinking it’s our entire fault, and maybe all in our heads.

She also mentions a good site for anyone who has problems with migraines, Robbins Headache Clinic.

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Posted on 24-11-2007
Filed Under (Fibromyalgia, Resources) by cyn

Curehunter is an interesting addition to our online toolbox. It’s a visual medical dictionary. Here’s part of what it gives me when I look up fibromyalgia:

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