Long term opiate use safe; One woman’s experience with Savella
There are two great articles from Karen Lee Richards in HealthCentral’s Chronic Pain Connection newsletter today.
The first, Long-Term Opioid Therapy – What Are the Effects?, brings us the results of Dr. Forest Tennant's ground-breaking study. He evaluated 24 chronic pain patients from 30 to 79 years old who had been using opioids for 10 to 35 years, and "concluded that the significant improvements in quality of life and physical functioning from opioid therapy are so positive they outweigh any negative complications, which can be easily managed."
Almost all of the patients (22 of 24) said their pain had permanently decreased over time. And the vast majority (20 of 24) felt their opioids still provided the same relief as when they started treatment. All of the patients reported one or more functions or activities they can do now that they couldn't do prior to beginning opioid therapy (i.e., get out of bed everyday, take walks, shop or visit friends).
The article details the patients' diagnoses and gives further information, and I encourage you to read the rest of it. While the study was small and obviously needs to be repeated with a larger group, this is marvelous news, and I for one and very grateful for Dr. Tennant's work and the participation of his subjects.
I have to say that I find HealthCentral's sites to be generaly decent, but the Chronic Pain Connection is outstanding. I encourage you to visit and subscribe to the newsletter.
Next, in One Patient’s Experience with Savella for Fibromyalgia, Richards brings us detailed feedback from one of her contacts, Brenda, who has been taking the new drug for seven weeks. Many of us have heard of Savella, but so few have had an opportunity to try it or know anyone who have that this article is very helpful in making a decision as to whether or not to ask our physicians for it. After reading about Brenda’s advice regarding insurance experiences, dealing with side effects, and positive results, I for one will be talking to my neurologist about a trial pack.
December 3, 2009
Tags: chronic pain, Forest Tennant, Karen Lee Richards, opiates, Savella Posted in: Fibromyalgia, Pain, Resources, treatments 
2 Comments
Do you have trigger points/CMP?
Trigger points (TrPs) confuse many people. People who suffer from Fibromyalgia Syndrome (FMS) have tender points that are used for diagnosis, not trigger points. TrPs can lead to Chronic Myofascial Pain (CMP). Trying to explain both of them is really beyond me, but Devin Starlanyl does a great job of making all of it clear. Her web site is great, but believe me, her books are even better!
In any case, I have CMP and FMS. For the past week or so, I haven’t been able to move my neck much because of pain on the right side that referred down my arm and around to my chest. I know I’ve got scar tissue there in my neck, and compression of a nerve between two of the vertebrae, but normally I can move my neck through a full range of motion. I have no idea what happened — maybe I slept wrong? I don’t know, and I haven’t really been sleeping much in any case.
I had my monthly visit with my pain management doctor today, and mentioned the problem. Right off, the PA asked if I wanted to try trigger point injections. Within 15 minutes, the pain was fading. I was afraid it would come right back, but so far it hasn’t. By the time I got home, I was falling asleep in part due to the intense relief.
I definitely hope that I wouldn’t have any particular place that is so painful next month, but I’ll definitely be ready to speak up about whatever is most painful.
If your doctor doesn’t offer trigger point therapy for you, ask about it!
If you’re sure that you have TrPs, you can also try treating them yourself. For laymen, the best book about TrPs is The Trigger Point Therapy Workbook by the late Clair Davies. I have a copy, and recommend it. I’ve found that it’s best used in conjunction with a TheraCane, but it seems there are several other nice tools available now, too.
I found it necessary to have someone else help me with the treatments, but they did work. They were more painful than the injections, and you need to do them three times a day. On the other hand, they didn’t require a trip to the doctor or a prescription, and once you learn how to treat yourself you can do it whenever you need it. Our former housemate helped me with the treatments, but I’m hoping that my partner will learn to do them. They do work!
August 19, 2009
Tags: chronic myofascial pain, CMP, trigger points Posted in: Pain, treatments 2 Comments
I’m alive! How about you?
It’s been an insanely long time since I gave this site its due. I suppose the real problem with blogging about health problems is that the people who know them best, by definition, have health problems. I’d love to find someone with whom to co-write this thing, so we could cover for each other!
Anyway, I had an insanely long bad period but I’m feeling better now. One factor in the improvement was stopping Effexor XR, which I’d taken for years. I didn’t actually do that on purpose — It was due to an insanely irresponsible doctor who refused to see me because of a screw-up in his office’s procedures, not anything I’d done wrong. I had to just stop taking it, cold turkey, which led to seizures and other problems. On the plus side, though, I’ve been far less drowsy and don’t need nearly as many hours of sleep as I did before. (I’m actually experiencing some insomnia, which isn’t good, but it’s a change.)
Anyway, my Social Security disability claim was finally approved after over five years of waiting. They haven’t started paying anything yet, but that’s supposed to happen Real Soon Now. I have to tell you, though — the Medicare thing is a confusing maze of choices, obviously designed by bureaucrats. You almost need to become a Medicare expert just to know what benefits are available and how to get them!
For now, here’s a link to an article I found interesting:
Do Fibromyalgia Pain Killers Make You a Likely Crime Victim?
I don’t agree with all of the advice. People in Georgia have been arrested for having legitimately prescribed medications because the medications weren’t in prescription containers. It’s a real nuisance to carry the bottles instead of just what you need, and it probably does put us at greater risk for crime — but is it worth being arrested? That’s a Catch-22.
August 13, 2009
Tags: crime, medications, safety Posted in: From the news One Comment
Tips & Tools for Working From Bed
I’ve never encountered this web site before, but it was linked from a blog carnival, and the article is pretty good: Because Sitting up is for Suckers: 70+ Tools, Tips and Hacks to Work from Bed
I still miss my laptop!
And I have a pretty nice setup, but can’t help drooling at this: the Ergopod 500. I’m not about to look at the prices, though!
June 27, 2008
Tags: bedbound, computing, ergonomics Posted in: Resources, employment No Comments
Why Can’t We Think Well When We’re Sick?
This isn’t specifically about CFS/ME or FMS, but I found it interesting, and I think it makes sense.
During an infection, humans typically experience a set of physiological and psychological symptoms, including fever, confusion, decreased motivation, depression and anxiety that are accompanied by a slowing of movements.
These changes, collectively known as “sickness behavior,”Вќ are the body’s way of conserving energy during illness so that an effective immune response can be launched. This new study helps researchers further understand how cytokines communicate between the immune system and the brain to promote sickness behavior.
Since many people with CFS/ME have chronic fevers and other symptoms similar to those of infectious illnesses, I have to wonder if the results of this study will be examined with regards to CFS/ME.
June 12, 2008
Tags: CFS/ME, cognitive deficits, cytokines, fevers, infection Posted in: Chronic Fatigue Syndrome, From the news One Comment
