FMS at PostSecret

Did any­one else see this at Post­Se­cret today?

safer.jpg

I was made aware of it by a post to [info]fibromyal­gia.1 Reac­tions there are fairly neg­a­tive, because so many of us have had bad expe­ri­ences with peo­ple who think we’re malingering.

I have mixed feel­ings, though. I don’t exactly share the sen­ti­ments expressed in the piece, but I do think it’s good art. I can relate to feel­ing like pain has been my entire life. It’s famil­iar. I can’t remem­ber any­thing else, honestly.

I don’t think I’m “scared to feel bet­ter,” though, because I really resent the pain, the fatigue, and espe­cially the brain fog. I’ve tried every treat­ment to which I’ve been able to get access, with­out much relief. Pain man­age­ment is all that helps in any way now.

I have, how­ever, got­ten very anx­ious about try­ing many things. Too many falls, fol­lowed by increased pain and dis­abil­ity, have made me incred­i­bly cau­tious. Unfor­tu­nately, I know that leads to more loss of mus­cle mass and endurance. I’m work­ing on get­ting past it. Know­ing is half the bat­tle, right?

Talk to me. What do you think about the artwork?


1 I can’t read Post­Se­cret reg­u­larly. It’s too fas­ci­nat­ing, and a big time sink!

March 23, 2008  Tags: anxiety, fear, PostSecret  Posted in: Chronic Fatigue Syndrome, Fibromyalgia, Pain

3 Responses

  1. chronic chick - March 23, 2008

    Thanks for shar­ing this. To me its a major slap in the face to many of us who suf­fer in pain and deal with the many affects of chronic illness.

  2. Another One Down - March 24, 2008

    […] stuff! I’ll be review­ing it at Ama­zon and on Fibrant Liv­ing soon. Speak­ing of which, I did post over at FL again today. Twice in two days, whoa! Maybe I’ll get around to, I don’t know, record­ing a podcast […]

  3. Hope - March 24, 2008

    On the one hand, it adds fuel to the malin­ger­ing fire. On the other hand, some peo­ple really do take a cer­tain com­fort in their symp­toms. I think this piece really works because it’s at Post­Se­cret — the artist can claim the feel­ing, with­out directly draw­ing fire.

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