Online Resources

Organizations

The following are specifically helpful for those who have fibromyalgia or chronic fatigue syndrome.

  • The National Fibromyalgia Association has a free online mailing list as well as offering its print magazine to members and subscribers.
  • The National ME/FM Action Network is a “Canadian, registered, non-profit organization dedicated to advancing the recognition and understanding of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Syndrome (FMS) through education, advocacy, support, and research.”

Mailing lists and other forums

  • Fibrom-L – high-volume mailing list for patients and caregivers. Subscription instructions here.

Tools

  • If the weather affects how you feel, you might want to check the Aches and Pains Weather Report from the Weather Channel (for North America). In the UK, try Aches and Pains Weather Maps.

Suppliers

  • ProHealth’s ImmuneSupport.com is a commercial site, but one which donates money to support FMS/CFS research. They have a very interesting newsletter and valuable information in their archives.

Other

  • The National FMS-CFS Database is a joint effort by many different respected organizations to match FMS-CFS patients with researchers doing studies, in order to encourage more research into these disorders.

One Response

  1. Fibrant Living » Blog Archive » Online Resources - Fibrom-L - May 14, 2006

    […] I mentioned in the first podcast that I follow numerous online resources. As there’s no way I could list all of them in one post, I’ll just mention one at a time in case they’re interesting to others, too. I’ll collect the links here, so you can always go back to find them all together, or just check the posts in the category Resources. […]

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