Online Resources

Organizations

The fol­low­ing are specif­i­cal­ly help­ful for those who have fibromyal­gia or chron­ic fatigue syn­drome.

  • The Nation­al Fibromyal­gia Asso­ci­a­tion has a free online mail­ing list as well as offer­ing its print mag­a­zine to mem­bers and sub­scribers.
  • The Nation­al ME/FM Action Net­work is a “Cana­di­an, reg­is­tered, non-prof­it orga­ni­za­tion ded­i­cat­ed to advanc­ing the recog­ni­tion and under­stand­ing of Myal­gic Encephalomyelitis/Chronic Fatigue Syn­drome (ME/CFS) and Fibromyal­gia Syn­drome (FMS) through edu­ca­tion, advo­ca­cy, sup­port, and research.”

Mailing lists and other forums

  • Fibrom-L — high-vol­ume mail­ing list for patients and care­givers. Sub­scrip­tion instruc­tions here.

Tools

  • If the weath­er affects how you feel, you might want to check the Aches and Pains Weath­er Report from the Weath­er Chan­nel (for North Amer­i­ca). In the UK, try Aches and Pains Weath­er Maps.

Suppliers

  • ProHealth’s ImmuneSupport.com is a com­mer­cial site, but one which donates mon­ey to sup­port FMS/CFS research. They have a very inter­est­ing newslet­ter and valu­able infor­ma­tion in their archives.

Other

  • The Nation­al FMS-CFS Data­base is a joint effort by many dif­fer­ent respect­ed orga­ni­za­tions to match FMS-CFS patients with researchers doing stud­ies, in order to encour­age more research into these dis­or­ders.

One Response

  1. Fibrant Living » Blog Archive » Online Resources - Fibrom-L - May 14, 2006

    […] I men­tioned in the first pod­cast that I fol­low numer­ous online resources. As there’s no way I could list all of them in one post, I’ll just men­tion one at a time in case they’re inter­est­ing to oth­ers, too. I’ll col­lect the links here, so you can always go back to find them all togeth­er, or just check the posts in the cat­e­go­ry Resources. […]

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