Fibrant Living» The Value of Education for Chronic Illness Patients – Fibrant Living by Cynthia Armistead http://fibrantliving.com Live a joyous, vibrant life despite illness! Sat, 06 Mar 2010 04:57:39 +0000 http://wordpress.org/?v= en hourly 1 Copyright © 2010 Fibrant Living cyn@fibrantliving.com () cyn@fibrantliving.com () posts Live a joyous, vibrant life despite illness! cyn@fibrantliving.com No no http://fibrantliving.com/wp-content/plugins/podpress/images/powered_by_podpress.jpg Fibrant Living http://fibrantliving.com 144 144 The Value of Education for Chronic Illness Patients http://fibrantliving.com/2008/02/19/the-value-of-education-for-chronic-illness-patients/ http://fibrantliving.com/2008/02/19/the-value-of-education-for-chronic-illness-patients/#comments Tue, 19 Feb 2008 22:35:44 +0000 cyn http://fibrantliving.com/2008/02/19/the-value-of-education-for-chronic-illness-patients/ Paula Kamen, author of All In My Head, talks about the value of education in coping with chronic illness in an excellent editorial in the New York Times.
Leaving the Rabbit Hole. This passage, in particular, spoke to me:

The worst thing, to me, about having a non-stop multi-year headache isn’t necessarily the pain. Or the way it tends to disrupt intimate relationships, empty all financial reserves, and sabotage the best-laid career plans. It’s not even the endless barrage of (albeit well-meaning) suggestions for “cures” from everyone you meet, most of which you’ve already tried anyway (except for the colon cleansing and the Jews for Jesus conversion).

No, it’s the emotional suffering – from all the guilt and the shame, of patients like me thinking it’s our entire fault, and maybe all in our heads.

She also mentions a good site for anyone who has problems with migraines, Robbins Headache Clinic.

]]> http://fibrantliving.com/2008/02/19/the-value-of-education-for-chronic-illness-patients/feed/ 1 The Syndrome Syndrome http://fibrantliving.com/2007/04/04/the-syndrome-syndrome/ http://fibrantliving.com/2007/04/04/the-syndrome-syndrome/#comments Wed, 04 Apr 2007 05:58:34 +0000 cyn http://fibrantliving.com/2007/04/04/the-syndrome-syndrome/ My goodness. I think somebody over at Home on the Strange might have encountered one of those people who makes life so hard for those of us who really have invisible disabilities! Go on over and read the comic. I don’t want to spoil the surprise!

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