Comments on: Cortisol and FMS and CFS/ME? http://fibrantliving.com/2008/03/22/cortisol-and-fms-and-cfsme/ Live a joyous, vibrant life despite illness! Sun, 26 Feb 2012 01:31:44 +0000 hourly 1 http://wordpress.org/?v= By: Tash http://fibrantliving.com/2008/03/22/cortisol-and-fms-and-cfsme/comment-page-1/#comment-3571 Tash Fri, 30 May 2008 04:50:10 +0000 http://fibrantliving.com/2008/03/22/cortisol-and-fms-and-cfsme/#comment-3571 Hydrocortisone is one of the only things that helps me, even more than pain killers. I have seen a bunch of studies saying it makes no difference, but it does to me. Just some anecdotal evidence for someone with FMS who has tried it. Hydrocortisone is one of the only things that helps me, even more than pain killers. I have seen a bunch of studies saying it makes no difference, but it does to me. Just some anecdotal evidence for someone with FMS who has tried it.

]]> By: Maija Haavisto http://fibrantliving.com/2008/03/22/cortisol-and-fms-and-cfsme/comment-page-1/#comment-3558 Maija Haavisto Sun, 11 May 2008 15:41:30 +0000 http://fibrantliving.com/2008/03/22/cortisol-and-fms-and-cfsme/#comment-3558 Hydrocortisone can be extremely helpful for CFS/ME and possibly fibromyalgia. Several studies have shown evidence of this - I don't know why you didn't manage to locate them. Hydrocortisone is the name used for synthetic cortisol, so they are essentially the same thing. Some people benefit dramatically from prednisone (myself included - though I've quit it a long time ago and am now on low dose naltrexone), but this is very rare. Usually the risks outweigh the benefits. Low dose hydrocortisone, however, is an extremely safe and well-tolerated treatment and helps many people. Greetings, Maija Haavisto, author of Reviving the Broken Marionette: Treatments for CFS/ME and Fibromyalgia Hydrocortisone can be extremely helpful for CFS/ME and possibly fibromyalgia. Several studies have shown evidence of this — I don’t know why you didn’t manage to locate them. Hydrocortisone is the name used for synthetic cortisol, so they are essentially the same thing.

Some people benefit dramatically from prednisone (myself included — though I’ve quit it a long time ago and am now on low dose naltrexone), but this is very rare. Usually the risks outweigh the benefits. Low dose hydrocortisone, however, is an extremely safe and well-tolerated treatment and helps many people.

Greetings,
Maija Haavisto, author of Reviving the Broken Marionette: Treatments for CFS/ME and Fibromyalgia

]]> By: amqueue http://fibrantliving.com/2008/03/22/cortisol-and-fms-and-cfsme/comment-page-1/#comment-3550 amqueue Fri, 28 Mar 2008 02:36:34 +0000 http://fibrantliving.com/2008/03/22/cortisol-and-fms-and-cfsme/#comment-3550 Having a 'working diagnosis' of 'probably fibromyalgia', I recently went on a one-week-pack trial of prednisone, on the theory that it would help detect/rule out the possibility of some auto-immune involvement. My personal anecdote is that I felt MUCH BETTER the first two days -- the pain went *away*, tho i was still tired. The muscle spasm-related pain went away also. Note: I was not taking any other medication, just the prednisone. As the dose went down, the symptoms that were particular life-impacting -- the pain, the muscle spasms, the spaciness -- came back. I went back on the meds just for functionality. Additionally, some significant edema I have in my legs went down by at least 50%, by both my assessment and that of my massage therapist. Alas, that's come back also. My appointment with the rheumatologist who prescribed this trial is on the first. Having a ‘working diagnosis’ of ‘probably fibromyalgia’, I recently went on a one-week-pack trial of prednisone, on the theory that it would help detect/rule out the possibility of some auto-immune involvement.

My personal anecdote is that I felt MUCH BETTER the first two days — the pain went *away*, tho i was still tired. The muscle spasm-related pain went away also. Note: I was not taking any other medication, just the prednisone.

As the dose went down, the symptoms that were particular life-impacting — the pain, the muscle spasms, the spaciness — came back. I went back on the meds just for functionality.

Additionally, some significant edema I have in my legs went down by at least 50%, by both my assessment and that of my massage therapist.

Alas, that’s come back also.

My appointment with the rheumatologist who prescribed this trial is on the first.

]]> By: cyn http://fibrantliving.com/2008/03/22/cortisol-and-fms-and-cfsme/comment-page-1/#comment-3534 cyn Sun, 23 Mar 2008 21:01:40 +0000 http://fibrantliving.com/2008/03/22/cortisol-and-fms-and-cfsme/#comment-3534 That makes two of us. I know it has something to do with PCOS, too. I'm wary of steroids, in general - I've been told to NEVER let anyone inject me with cortisone again - so I'm definitely not rushing to try this. That makes two of us. I know it has something to do with PCOS, too. I’m wary of steroids, in general — I’ve been told to NEVER let anyone inject me with cortisone again — so I’m definitely not rushing to try this.

]]> By: Hope http://fibrantliving.com/2008/03/22/cortisol-and-fms-and-cfsme/comment-page-1/#comment-3533 Hope Sun, 23 Mar 2008 20:38:52 +0000 http://fibrantliving.com/2008/03/22/cortisol-and-fms-and-cfsme/#comment-3533 I could have sworn that cortisol is associated with the negative symptoms of on-going stress. I could have sworn that cortisol is associated with the negative symptoms of on-going stress.

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